Zach's Corner

Hi, I’m Zach Dearth and welcome to Zach’s Corner! Here you’ll find some interesting things about me like what I enjoy doing as a kid, some photos of me with friends and family, and a regular update (blog) on how I’m fighting Hunter Syndrome and how it’s affecting me.

First, let me tell you that my favorite time of year is Halloween. Mostly because I love dressing up in costumes and pretending to be different types of people like a firefighter, police officer, soldier, doctor, and, most importantly, Batman! I enjoy Halloween so much that I talk about it all year and constantly ask my mom and dad, “What do you want to be for Halloween?” or “Mommy, what can I be for Halloween this year?” My mom started replying with, “Zach, no more Halloween talk until October.” So, I stop asking for a day or two and then start asking my questions again!

Speaking of dressing up, I also love parties – especially birthdays. And even more so if it’s my birthday party! If we have cake for dessert and it is near someone’s birthday, I make dad put candles on the cake. And if we are celebrating someone’s birthday, we have to wear party hats – even the adults.

When I’m not getting ready for Halloween or partying like it’s my birthday, I love to create things with Play Doh, paint pictures, and watch shows like Dora & Diego, Backyardigans, and Mickey Mouse.

Wanna know more about me? Check out my Zach’s Facts below or browse my photos to the right. I love looking at pictures – especially if they’re of me – and hope you do, too! Oh yeah, there’s even Zach’s Blog – just click on the button below to read how I torture mom and dad on a daily basis and how I’m doing with Hunter Syndrome.

Thanks for taking the time to learn about more about me, this terrible disease, and for visiting our site. I hope to see you at some of our events – especially Zach’s Run (yep, it’s named after me!).





Zach's Facts

• I was diagnosed with Hunter Syndrome in July 2005.

• I begin Kindergarten this year and cannot wait.

• I receive weekly treatments as part of my Enzyme Replacement Therapy that helps slow down the progress of the disease.

• My best friend is Kayla (she’s in my Pre-K class) and my cousin Eric.

• I have tubes in both of my ears to help me hear and speak better.

• My favorite foods are pizza, chicken nuggets, fruit snacks and ice cream.

• I attend physical and speech therapies every week.

• I love playing in the pool and pushing people in!

• I am five years old and currently there is no cure to stop the disease I have.